Long-Haul COVID: We Need to Do Better

Symptoms from COVID-19 can last many weeks, even months, and manifest in strange and unexpected ways. In Britain, the National Health Services (NHS) has formed clinics for long-covid, as they call these persistent cases, as well as support groups. The United States (U.S.) should follow their lead. At the moment, in the U.S, where we refer to prolonged symptoms as Long-Haul Covid, people have been searching for and forming their own support groups through Facebook and Slack. By reaching out to other COVID-19 survivors with symptoms lasting two weeks or longer (the definition of “long-haulers”), people have even taking research into their own hands via surveys amongst the group. 

While people experiencing long-COVID report a list of 64 or more potential lingering symptoms, the top 10 include shortness of breath, chest tightness, fatigue, chills, sweats, body aches, dry cough, low grade fever, headache, and “brain fog” or difficulty concentrating.  

Of note, “long-haulers” who have persistent symptoms generally did not require hospitalization when they first caught COVID-19.

There is much to learn about this condition; with “citizen scientists” taking the lead, they are learning from one another. But, similar to England, the medical community in the U.S. should be finding ways to better support and care for COVID-19 sufferers with long-term complications.

Do you have a story to tell about your symptoms of long-haul COVID-19? Please share with us here.

 By Jacki Hart, MD

Will 21-Year-Olds Learn to Take the Pandemic Seriously?

Doug, a 21-year old college student in Boulder, Colorado (CO), tested positive for COVID-19. Unlike others who have had much more serious cases, Doug was lucky. He only showed symptoms for a single day and, thankfully, never entered a hospital or emergency room. In fact, Doug assumed, at first, that he had the flu. 

Reflecting on his experience, Doug describes his main lessons from his quick brush with coronavirus. Doug learned, in large part, that his peers tend to take COVID-19 for granted. In fact, many in his friend group wound up testing positive, including the person from whom Doug contracted the virus. But few have taken it seriously enough to alter their habits and behaviors. 

Despite having had a smooth, easy course without complications, Doug now recognizes how contagious the virus is and tries to communicate with his friends the importance of wearing masks and taking other precautionary measures. Doug bases his newfound caution on the fact that he was exposed to the virus when in the same room with one or more who later tested positive. In fact, as Doug recounts, he was never in direct contact with an infectious person, just in the general vicinity

Even before having any symptoms, Doug sought testing because of this exposure. He found it difficult to locate a site; then, serendipitously, he developed symptoms one day later, which lasted less than 24 hours. Doug was quarantining from the time that he learned of the exposure. Three days after his symptoms began, his test results came back positive. His housemates and several friends, who had also been at that party, all tested positive; but no one had more than short-lived, mild symptoms.

While quarantining with housemates, their community came through with support. Other friends without COVID-19 delivered groceries and other supplies. The day that Doug shared his story with Covid-Recovery.org, he was scheduled to get his follow up test back the next day. He was anxious to know the results because he had stayed out of work for nearly a month. 

few his age seem to be taking the virus seriously enough.

When probed about the opinions of COVID-19 held by his peers, Doug described stories similar to what is shown in popular media: few his age seem to be taking the virus seriously enough. Those in Boulder, CO are still holding house parties, and while they wear masks when entering shops and bars, which are mandated, they’re not participating in strict social distancing. Doug believes that people his age might be convinced to change their behavior if their return to college was in jeopardy. Universities, like all schools throughout the country, are making a range of decisions based on the risks within their regions and many other factors. Part of the problem is that the delay between the risky behaviors that might spread the infection and any rise in rates could preclude students from connecting their actions and the schools’ decisions or altered policies. 

As far as Doug’s own behaviors — even though his case was mild, he carries an important message for people of all ages: listen to your doctors and wear your masks! 

Written & Reported by Robert Shepard
Edited by Dr. Jacki Hart